ABSTRACT
Lysosomal storage disorders (LSDs) are a group of inborn errors of metabolism (IEM) characterized by multisystemic involvement with multi-organ complications. The recent Covid-19 pandemic had a major impact on the management and treatment of patients with LSDs, who also experienced significant psychological distress following the pandemic. Several experiences described so far demonstrate that telemedicine and home therapy programs are valid tools for the follow-up and care of patients suffering from these complex chronic diseases.
ABSTRACT
The aim of the study was investigating the association between the impact of the COVID-19 pandemic on the life of adolescents and their families and aggressive behaviour, moreover examining the moderating role of parental warmth. 1.053 adolescents completed online measures regarding: impact of the pandemic on individuals and family harmony, warmth, aggressive behaviour and perceived change of aggressive behaviour during the lockdown. Two structural equation models were tested to examine relations among variables. Results evidenced: a) the association between higher individual impact of the pandemic and higher levels of aggressive behaviours and their increase;b) the association between a higher impact of the pandemic on family harmony and the increase of aggressive bahaviours;c) the protective role of parental warmth. © FrancoAngeli